Tag Archives: glioblastoma long term

Because May is brain tumor/brain cancer awareness month…and because I look back at the last 6 years since diagnosis and say “Look what the Lord has done.” 

We aren’t any more worthy than anyone else and I don’t understand why I’ve seen so many amazing people lose their lives here in earth to Glioblastoma and why Mike is alive – I do know many lives have been touched and I knew in 2012 to start my blog so people could follow because I felt that God was going to use our situation for something big. I just felt like there was a bigger picture all along. I accepted the prognosis. I prepared, I planned a funeral, we made sure all affairs were in order. We found peace. I have gone through some lows and have been exhausted too, but 90% of the time in the past 6 years I’ve held strong.

Mike’s surgeon specifically told me not to even bother with a second opinion. That’s a huge part of my memories and a huge part of knowing God was in this from the beginning. I’m a people pleaser and I had to learn to stand up and fight back. To be an advocate for Mike and not accept just whatever I was told. His surgeon was amazing and I know every person we dealt with had a purpose for our lives. But I remember by discharge I already knew I was taking him to Duke and I had kinda asked the surgeon his thoughts on a second opinion at Duke or MD Anderson before starting treatment – he said no, not to even consider it. To contact a local doctor – which by the way, there is no a treatment that will cure GBM – chemo and radiation is just a way to buy some more months of survival. God put us on someone’s heart before Mikes surgery even happened!! She gave me a heads up on GBM and told me about how amazing Duke was before we had a diagnosis, I ALREADY knew that if I heard “GBM” that we were going to Duke for more options. She told me she knew Duke gave her extra precious months with her husband before he passed away. The Brain Tumor Center at Duke gives hope and options sometimes when other doctors don’t. Sometimes they just can’t, but I was told to get there fast (before starting any other treatment) for the best chances of having options. 

GBM is a horrible diagnosis. But it wasn’t a death sentence for Mike. Even if he would have died within that first year, GBM brought Mike into a place of eternal life. And not only Mike! So many lives have been led to God through this. CA71A330-7CDC-4F1F-A466-28CF909484E8


April 2016 – Great Wolf Lodge, Williamsburg

Sometimes you just have to step away from everyday life.  We spent a few days at Great Wolf Lodge in Williamsburg.  Between the wheelchair for Mike and him not being able to last long or be left alone, the baby, and Kenzie wanting to play – I couldn’t have done it alone!  I’m thankful that I have family that helps.  He struggled with not feeling well and wouldn’t have been able to walk around so the wheelchair was a must, but he wanted to be where we were. When I was in the water with the kids, I’d often look up and see him there in his wheelchair with a big smile and waving at us.  Great Wolf Lodge is the perfect getaway for us because Mike can go back and forth between napping and the fun. It’s pretty close to home and the hospice company is able to set up a backup plan close to the hotel if he needs medical care while we are there.  As long as I have enough people around to help, the kids can just have fun all day and Mike can pop in and out of the fun as he feels up to it.  I already can’t wait to schedule another trip to GWL!

Look at our crew!

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