Tag Archives: gbm long term survivor

#CaregiverStrong

Being a caregiver to your spouse is a unique position to be in. Often it means you give up the hopes and dreams you had together. In my case, it also meant I stopped dreaming about my own goals and dreams. My entire focus has become Mike’s health and well being. I noticed this happen little by little…

“I will sleep in the hospital because he is too confused to be alone.”

“I will take a break from working.”

“I will cut up his food because he can’t figure out utensils.”

“I will shower him because he’s uncomfortable letting anyone else do it.”

“He has a hard time separating reality and television, so I will keep the tv off.”

“He needs to sleep, so I will keep it quiet.”

“He is in the bedroom resting, so I will just pull some clothes out of the clean laundry.”

“Loud noises are hard, so we won’t go to restaurants or crowded areas.”

Ultimately it turns into “No one can ease his anxiety or care for him as well as I can, so I will stay home.”

…Am I right? This is a common theme among caregivers.

Caregiver pamphlets always have elderly people on them. Has anyone else noticed that? There is a whole community of us that are younger and are facing struggles that no one can imagine.

There is so much life to be lived. You can still live fully alive, even while devoting your life to someone else.

Don’t. Give. Up.

More to come on this subject.

Just know you aren’t alone. #caregiverstrong

 

 

 

 

 


Christmas Baby!

I am sorry that it has taken me so long to update. Things have been crazy, as you can imagine. I’m so proud to announce that our Grandbaby was born on December 25, 2015!  She is 3 weeks old and we all love her so much. The labor and deliver went smoothly and our daughter was amazing throughout the whole process. I was able to be in the room for the entire labor and delivery because my sister, brother and law and mom all stayed at our house to take care of Mike and the other two kids. Another cool fun fact is that they came home from the hospital ON MIKE’S BIRTHDAY!  What a birthday gift!

As you look at these photos, I hope that you see God’s grace.  I’m so proud of our daughter for choosing life.  Becoming pregnant at 15 was overwhelming, but God’s grace has really been present through this entire situation.  We are closer than we have ever been as a family and we have more joy than we have ever had. I am devoted to guiding Kayla in  motherhood and making sure this sweet baby is loved and provided for. We’ve got this.

Mike was able to meet his grandbaby in the hospital and I will share the video that captured him meeting her. The very last few second is the best.

Another exciting fact is that this month we celebrate that Mike has been on hospice for TWELVE MONTHS!  Praise God!  He is 43 months PAST GBM DIAGNOSIS!

Caralyn Elizabeth Emmons born December 25, 2015. 7lbs 2oz, 19 inches long.