Dec 31, 2018

This bracelet represents Mike as a hospice patient.

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This is mostly just a copy and paste from an update I did, but I wanted to make sure I updated everyone here too. We have switched back to comfort goals vs rehab goals. He hasn’t walked since the 13th. He hasn’t been able to talk much at all since the 20th. He’s been sleeping for days, only becoming alert for a few seconds here and there. He has only had a few bites of food in the last few days. Swallowing is still an issue so he has to have thickened liquids or puréed foods. 

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In technical terms, leptomeningeal carcinomatosis is what is suspected because his MRI showed extensive leptomeningeal enhancement involving the left posterior frontal, left insula, left temporal, and left parieto-occipital lobe. The spinal tap results may give us an official diagnosis tomorrow, but unfortunately he had a traumatic tap and they were unable to get much fluid for testing. The doctor said today that he has had a rapid decline. 

We aren’t sure if he’s going to go to the Veterans Hospital for inpatient hospice (it is a nice facility), another inpatient, or if he will come home. I’m just trusting the process. If something is open and the process goes smoothly, then I trust it’s meant to be for him to be inpatient…if not then I’m meant to finish this race and close this chapter with him as his caregiver at home. The doctor did tell me this morning that she is taking the decision out of my hands and looking for inpatient options (unless I really am adamant of course.) 

It’s been a crazy couple of weeks. I was out of town when he was admitted to the hospital and on the way back my van was totaled. I was completely stopped on the interstate when a man in a truck dropped his cigarette and didn’t even notice I was stopped. Thankfully he swerved at the last moment and there were no injuries. Just the totaled vehicles. I haven’t had the emotional energy to vehicle shop.

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Right now he isn’t very alert but over the past few weeks I’ve gotten some good photos…I will share some…

We had a good visit with him on Christmas.

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Our bestie Becky gave him some amazing pampering with a shave and a bath in bed. She did her magic tricks and even changed the sheets with him in bed. Becky continues to be one of the biggest blessings we could have never even knew we needed. 

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Here is a throw back to one year ago when they went out on a lunch and haircut date!

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2 responses to “Dec 31, 2018

  • Katy Evans

    Shauna, I don’t know if you remember me but Mike was my first boss as a govt civilian. I’ve followed your blog and am inspired by your courage and spirit as Mike goes through this. Not long after Mike was diagnosed, my husband had his own scans and has been battling cancer for the last 5 years. It’s a different kind of cancer but aggressive nonetheless. You’re an awesome caregiver and thank you for your posts. I can relate to a lot of it and it inspires me to also not give up. You both are truly inspirational, even when you think you aren’t!

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