Not a lot came out of Mikes oncologist appt today. We got prescriptions and lots of hugs from the nurses that took care of him before hospice. He has an MRI scheduled. The doctor was talking about how Glioblastoma patients aren’t expected to live long enough to see the damage that treatment causes. (Mainly radiation to the brain) Today just reminded me that Glioblastoma is a beast. Either it takes your life or if you are one of the “lucky” tiny percentage to live past 4 years like Mike has, treatment takes your quality of life. Just let me sit here for a minute in this – you know I am thankful and I see the bright side – but the reality of our day to day life honestly sucks most days. And I feel like I wouldn’t be totally truthful if I’m always all “I’m thankful and so blessed.” I am, but there is a hard side to this life and I don’t want to gloss over that. Brain cancer is a beast. It has stolen Mikes hobby’s and his ability to take care of himself. Because of that, my entire family’s life is dramatically impacted as well.
So tomorrow I will resume with the rainbows and butterfly’s but tonight I just don’t want to. It’s possible to be thankful and also have a hard time with the reality of a situation.
I want to leave you feeling inspired and uplifted, I really do. Sometimes it’s enough to get through the day. It doesn’t always have to be this huge happy cheerful song and dance…sometimes surviving is all we can do and it’s enough.