April 2016

We are getting so close to 4 years past diagnosis!! I can’t believe we have done all of this for so long. Its a blessing and an exhausting thought all at the same time. I am trying to update at least once a month, but I am really pulled in so many directions these days. Instead of getting overwhelmed, I try to remind myself that it is a blessing to be needed.  I’ve thought a lot these past few weeks about how things that are put in our lives to be a blessing somehow get misconstrued in our minds as a burden.  I look at the responsibilities I have – bills, the house, kids, Mike – and I’m sad to say that some moments I see a mountain of overwhelming stuff.  Then I remind myself to look at each blessing that is there. I’m blessed to own a home. I’m blessed to have kids and a husband. I’m blessed to have a yard to mow. I’m blessed to clothes and food even if they turn into laundry to be done and dishes to wash. Perspective is everything. I’m all about choosing joy and finding a place of thankfulness.

Mike gets up and out of bed most days. He’s still unsteady walking and has a hard time communicating at times, but overall he’s “ok.”  The confusion is hard on me.  For instance, when we go to sleep at night I have to lay there for at least an hour answering the same questions over and over again. It does get exhausting.  It’s like his brain gets stuck in a loop of a certain thought and he obsesses on that one thought for hours.  He still spends hours in the yard trying to be productive.  He doesn’t sit still when he’s awake. He wanders constantly.  He walks in circles inside the house or walks around the yard doing things that don’t always make a lot of sense.  We cleaned up gumballs inside the fence and one day he spent hours outside the fence throwing gumballs and sticks into the yard.  This really was a pretty flowering bush! :/

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Cameron, Kayla, Kenzie and grandbaby Caralyn are all doing well.  I don’t have any pictures of Mike or Cameron handy right this moment but I will share some recent photos.

 


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