I wanted to update on hospice. Hospice is going very well, I love the hospice nurses that come out. It has been pretty typical for the nurse to sit and talk to me for 45 minutes and then go into the room and check Mike’s vitals. This last visit was the first time Mike was actually awake when the nurse came so she sat at the table just getting to know him. I am very happy that this hospice company works closely with Mike’s oncologist office, so we still are somewhat under the care of the doctor and nurses that we love so much who feel like family to us. The only difference is that Hospice is who I call, and the Hospice nurses call the doctors office. When Mike needs a prescription, it is still his same doctor making the decisions. I used to call the nurses/doctor when I had a problem, so it brings me so much comfort that the hospice nurses are calling the same doctors office that we have been going to for over 2.5 years for Mike’s care. I now have even more support. Instead of feeling like we took something away, I feel like we have added. We did take away the Avastin and chemo, but we have added more resources and people to make sure Mike is comfortable, and at this stage, it was the absolute right decision. I spent many nights not knowing what to do and now I have someone just a phone call away, even in the middle of the night. I feel peace with the decision.
February 4, 2015