May 29, 2014

I met with the evaluating nurse yesterday for home health. Home health provides very little at this point. They basically will stop in and check his vitals. No physical help or respite.  Obviously hospice will provide much more once we decide on them, but that decision hasn’t been made yet. Its on the table as an option. Making that leap from fighting the cancer and having MRI’s done to not doing that is a hard decision to make after two years of fighting it.   I’m meeting with a hospice nurse though this week or Monday so that I know for sure the specifics on what they will provide when we make that decision. As of now, the Duke trip is still scheduled for June 4th to see Mike’s neuro oncologist there.  Mike is still smiling and laughing at times and making jokes.  He hasn’t had his daily chemo, so I keep hoping he will bounce back and feel better.  He was a little stronger yesterday than he was the day before, but he did stay in bed and was only up 3 times for about 20 minutes each time.  His sister is flying in for a visit this weekend, and his step mom is flying in for a visit next weekend so please pray that these visits refresh him and that there is peace and comfort in these trips for them and for him.


2 responses to “May 29, 2014

  • Amy

    He’s got a great sense of humor!

  • Donna

    Hi, I came across your blog looking for answers and hope like so many who are facing GBM. My story is so much like yours. Although I haven’t finished all your entries, I could not get pass how similar our paths are. My husband, at the age of 42 was dx with GBM. He collapsed at work after 5 weeks of not feeling well. Also was told migraines and sinus infection. I rushed him to hospital on June 19, 2012. CT showed possible tumor. He was admitted to hospital and we waited for MRI. Fast forward to June 26th. Surgery for right frontal lobe tumors. Both the size of golfballs. Told 2 days later it was GBM. After 8 months of protocol treatment, cancer had progressed. So we decided to go to Duke. Now on our second clinical trial. We also go to Duke next week on the 4th for MRI. 4 weeks ago, MRI showed high probability tumor progression at the new new tumor site. I am so sorry your husband has taken a turn for the worse. I will praying for you guys and hopefully peaceful news from Duke next week. The dates of his dx and my husbands are so close. Best wishes and may God guide and support you during the days ahead.

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