We saw Mike’s local oncologist today. His weight is down to 147. His pain has been excruciating so I got a prescription for dilaudid (morphine equivalent, but he’s allergic to morphine) These debilitating sharp pain head pains are new for him. He’s had bad head pain, but not sharp pain to the point of moaning. He has to stop whatever he is doing and let the sharp pain pass. I had to wheelchair him into the office for the first time today. We decided to stop chemo for now, we are probably also skipping next weeks Avastin.
All medicines stop working with brain cancer . There is no curative medicine for Glioblastoma. Medicines can work for a time, but they all stop working. Prolonging life when there is quality of life is a good thing. But when there is nothing being salvaged in quality then it might not be worth fighting for quantity anymore. That’s what the doctor had to say today as I asked him his thoughts on quality of life, quantity of life, etc. We are focusing on quality of life over quantity today and this week. We are trying to improve his quality of life by not doing the treatment, then maybe can try something else if quality improves. Without quality, quantity is pointless. We are also calling in bridge hospice, before committing to full hospice.